Showing posts with label jillgirl. Show all posts
Showing posts with label jillgirl. Show all posts

Friday, March 23, 2012

CHANGING STORIES

Have you ever felt the grip of fear that the story of your life is neither what you had dreamed of as a child or what you thought it would be as an adult?

This fear then shadows you for what seams like eons -- really is just empty years unfulfilled as you've allowed yourself to be carried by the mediocrity of the world, flavored by beliefs about yourself that are totally permeable if you examined them under your spiritual loupe. I finally recognized it December 2009 but have been feeling it circa 2001. Funny how facing your own mortality will shock your atoms to attention like a drill instructor screaming in the face of a new recruit while leaving spittle on his face to punctuate his points.

Two major cancer surgeries and two sets of chemos have driven me to change the stories about myself. Things like: I am not outdoorsy nor athletic. I am not strong enough. I am not smart enough. I am not beautiful enough. I am not deserving of the abundant life I have been peering at from the other side of the cold glass door that was fogged by the warmth of my doubting breath. How have I not seen that the door did not have a doorknob because it was actually open all along and all I had to do was walk through it? Madness.

Since my last post, I have been consciously making alterations in many aspects to change the stories about my life. Life does not stop just because you have had a Spiritual Eureka. I have encountered stresses at work, identity theft and the specter of a cancer recurrence. My recommendation is to set yourself up for success so you can breakthrough self-limiting beliefs one at a time. Breakthroughs are cathartic...

In January, I went camping and HIKING. What?

Last month I went zip-lining with my diva-delicious friend Jill! As her schedule permits with work, hubby and growing adorable sons, we will indulge ourselves in new adventures. This time we scaled two towers, 45ft & 65 ft respectively which were part of eight zips across the tree canopies at 30 mph, 65ft above ground. Our harnesses took us from 225ft-950ft long zips. Did I mention having to cross two rickety rope bridges wide enough for your feet? It was exhilarating! I am very lucky that heights do not scare me. The bridges were the most difficult. I am so fit at the moment that climbing the 65-ft tower did not leave me breathless. Yeah, Sprinkles!

The gym is now an integral part of my life. I saw a guy outside the gym and didn't recognize him in civilian clothes until he said to me, "See you at the gym". Really? That sentence would have been unheard of spoken to me! When I am late or don't show up, the other regulars get at me when they see me. The first time it happened, I was annoyed. Now I take it in stride because they know how far I have come.

For example... See this Free Motion Squat Machine?



When I started in late September still weak from chemo, I could only lift 30-40lbs on my shoulders, 1 set of 10 repetitions. I also needed quite of bit of assistance squatting down just past 90 degrees on my knees at the beginning to "catch the weight" and hike it up to starting position. Now I can do 140lbs, 3 sets of 15 repetitions with no assistance squatting almost sitting down on the ground to catch all the weight. I can cry just thinking of my progress.

Indoor farming now, too. Okay, I have only started with broccoli sprouts, but I think I will be progressing to microgreens soon. It is very satisfying to harvest after just one week of growing from seed.

On the immediate horizon, I have a trip to California in June to look forward to after being in Chemoberia for two years. Been outlining my script for my youtube videos. I just figured out how to make my own homemade teleprompter and also where to buy a small studio light kit with backgrounds for when I film them.

I missed my blog and tonight I decided to catch up a little. I am going to revamp this page, too. The background color is a start for now. Probably scrapping the whole design and starting over. We'll see. Stories can change.

My Love to You!
Sarah Sprinkles
xxoo
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Friday, June 04, 2010

Love Infusion No. 5

Unsure of how I felt today, I continued as if I were sure of myself and how I would deal with my fifth and second to final infusion of chemotherapy...

I got up and took my water pill before getting online to read a bit and getting on facebook to update "my status". For my breakfast, I ate a chopped avocado like cereal by adding almond milk and two tablespoons of agave nectar (low glycemic sweetener). Then it was time to take a shower.

At 6:30 I received a knock on my door. It was my uncle who had come to pick me up. He was an hour early! OMG. My aunt told him the wrong time. I still had to put my make-up on, get dressed, vacuum, and make sure I prepare my bag for the day. Sigh. No worries. I adjusted. I decided to skip vacuuming and made my uncle some fresh coffee instead. He drank coffee and watched the news while I got myself together.

My uncle was not spending the day with me at the cancer center -- just giving me a ride. This would cause me great stress as I would worry if he was entertained enough or was eating enough. I turned down Tawny's husband's offer to take me, too, as I would feel the same way. I was stressed when he took me for Love Chemo #3. He was working part of the time during the day and I got worried if he was missing something important when we moved from one part of the building to the next as we progressed through my day at the cancer center.

Men get bored easily and need constant forms of stimuli as well as usually have some form of Attention Deficit Disorder. I don't want them to feel like martyrs or taking one for team. This is ingrained behavior from childhood...to wait on men. Jeezus -- sometimes I wish I didn't fully nurture this gene, but that's the way it is. Why? Because it is stupid. Good for the men in my life though. Bastards. Ha. OKAY TO BE FAIR -- I treat all my friends/family this way. More on this later...

I carried this basket of cookies as a gift for my surgeon and his staff:




Eight designs and everything on the cookie is edible:



I had the nurse who took my blood draw pick one out. She was working the check-in desk, but took time out to draw my blood at my request. We've gotten to know each other and she gave me a spontaneous hug before I left. It made me smile as I made my way to pick up a refill prescription before a small break at the cafe. My surgeon appointment check-in was 30 minutes away.

Like last time with the bakery box filled with chocolate ganache cupcakes I made, I got curious stares and a worker was curious enough to ask and show the other workers at the cafe. One of the ladies behind the counter wanted me to make one that said CANCER SUCKS. Why the hell would I do that? Yes, we all know it does, but why feed others words that are negative? I am all about moving away from fear and moving towards joy. It can be a difficult journey so I am not adding that ever.

Actually seeing my surgeon was later than I had hoped. I don't like delays. There was no student doctor or any other doctor to see me before my surgeon. He was it and my favorite nurse attending me. (I told my nurse who happens to be Russian all the Russian words I knew and was complemented on my pronounciation -- yay!) My surgeon is very pleased with my progress and seems surprised at the low presence of side effects with the exception of increasing fatigue. He doesn't fully understand how I've taken it on as a project to mitigate the side effects as much as I can through diet, supplements, sleep and behavior modification. I am a research fanatic.

I asked him some questions like:
1) Can I consume alcohol? Yes -- I can have a glass of wine if I want.
2) How long are the chemicals in my system after my last chemo? Six to seven weeks. The fatigue could last much longer. Grrr. I intend to be the exception not the norm thanks to the overachiever I am.
3) Did he enjoy my chocolate ganache cupcakes from the last visit? He looked at me with a half smile and said he very much enjoyed them and said that I definitely have a talent. Gawd..If he only knew the craziness I am capable of at any given moment! He seemed a bit embarrassed which I took as he ate a few too many even though he shared with his staff. There were about 30 of them. LOL

I was worried about my food intake today because it is advisable to have a full tummy during chemotherapy. I had a protein with fiber shake before my exam and ate a special granola bar while I waited to be called for my chemo. Serina didn't come to take my lunch order as she's done for all my treatments so far. I found out later when she came to see me that she was swamped at work. It was no big deal as the infusion center provides bagged lunch choices.

There was a delay for my chemo which I suspected because my surgeon was delayed as well as the floor was short of staff. This both upset and pleased me. It upset me because I wanted to get out at 5pm and pleased because I didn't have to rush through lunch and it had some time to digest. This must be key for when the Benadryl drip was administered, I wasn't as immediately sleepy.

Before my "chemo cocktails" were facilitated, I wrote my friend Jill a note and placed it on the counter next to me with a bottled water, one of my cookies and a small piece of chocolate. It was waiting for her when she arrived at 1:30pm when I was already asleep. (See what I mean about nurturing????? I always think of ways to make feel people appreciated and special. What you give out to the universe is what you get back. I get back a ton!)

After a bathroom break during my chemotherapy, I was able to see my fellow GLAMcer friend sitting in one of the infusion chairs. I visited for about five minutes. She gave me her professional card and added her e-mail and cell phone number. We are going to make walking dates after work since we work around the same area AND we live near enough. Talk about cool bananas!

During Jill's visit, I managed to stay awake longer than previous times. We laughed a lot. She was stunning as always. She left at 4:30pm to pick up her kids. It was like the changing of the guard. Serina came for a short spell at the same time. I urged her to go home and wash the day off with a shower. She looked exhausted and frustrated. Serina received two cookies to take home.

All my drips were finished by 5:30pm. My aunt and uncle were waiting for me outside. They drove me home and stayed a little over an hour. My uncle looked tired from waking up too early and from his exercise at the gym. My aunt brought me some food so I wouldn't have to cook that night or a few more meals. She is very sweet. I brewed them coffee and gave them a piece each of the cookies I made which makes the amount of cookies Sprinkles has in her home to zero.

I spent the evening reminiscing about the day and just relaxing. Ended up snoozing on the couch for a few hours before washing the day away. I wholeheartedly recommend taking a shower at night every night to wash any negative energy you've taken on throughout the day whether that is contact with other people or of your own doing. Why would you want to take all that crap to sleep and marinate in it? Of course, I take a quick shower in the morning, too. It just makes me feel good.

Overall, my day was great! Thanks for all your facebook comments & facebook private messages and supportive e-mails, my lovelies. Every bit helps me get through the day.

Hugs and Kisses,
Sarah Sprinkles

PS...My friend Jill said something more unusual than she does. When she opened the package of cookie and tasted it. She said it reminded her of me. Huh? She said she could close her eyes and immediately knew it was me. The flavoring she was tasting were vanilla and almond extracts. The cookie itself was not overly sweet because of the added royal icing or hard sugar icing on top, but there was definitely butter. Hee.
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Tuesday, March 30, 2010

Eurasian Pixie

A very sweet friend gave me the name of my new look: Eurasian Pixie. Sounds groovy to me. That's what I am going to tell other people when I explain why I chose this particular wig or look.

My wig took me two tries to put on this morning only because I hadn't asked the salon hairdresser how to do it yesterday and to be honest, I was not paying attention. The only thing I have to get used to is having hair in my eyes. I am too afraid to put the wig back more for fear of it popping off or slipping at an inopportune time. Ha.

My nurse was most annoying to me today. She had called at 10:18am to make a window appointment between 12pm and 12:30pm. When 1pm rolled around without a call, I called her phone and left her a voicemail saying that with or without her I would be leaving at 1:30pm or 1:45pm. I had stuff to do and I was ready to leave the apartment. Wouldn't you know she called me at 1:30pm to ask if I was still home and that she was on the road and two minutes from me? Two minutes my ass. She was almost 16 minutes. Grrr. To top it off -- there was NO APOLOGY. This nurse is very nice but her time management skills have got to go. The appointment is an easy earning of money for her -- believe me.

My "To Do List" was very specific today: finish clothes shopping. Two stores yielded me another pair of black denim jeans, two pairs of dark blue denim jeans, one pair of chinos, one white camisole to wear under my new turquoise blouse from the other day, three new bras, one black lacy underwear (ooh-lala!) and two pairs of large earrings to wear especially during scarf days. I also did a bit more grocery shopping since I forgot some things from yesterday.

For dinner I cooked the best veggie product: smoked hickory barbecue "riblet". Oh my gosh was it delicious! My craving for barbecue was satisfied with a mystery veggie product slathered in sauce. I eat about 65% meatless dishes and I am hoping to increase the percentage going forward.

My evening was further brightened by a wacky call from Jill. She says my hair reminds her of a "spy look". I reminded her of one of my facebook comments regarding Emma Peel of The Avengers. Our sense of the ridiculous was amplified within minutes. Who needs to watch blockbuster drama films when we can create our own and laugh like girlies having a slumber party? She always astounds me and makes me laugh out loud. Jill can do all this while directing her two energetic sons for their evening routine.

It is late now, the news is on. I finally took my wig off and it is next to my laptop until I let it rest on its wig stand. The whole wig thing feels normal at the end of today. After my shower, I will don my Super Comfy Super Soft Sleep Cap. I guess it is my version of a nightcap until I can have any kind of alcohol in late summer. Meanwhile, I will find ways to play up my new look.

Hugs,
Sprinkles xo

PS Check this out: Bald Model. If only my own cranium looked so chic naked!
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Friday, March 19, 2010

Plenty

Was there anything I couldn't do today? Well, yes, there is plenty, but that didn't keep me from making the day really count.

Breakfast came and went right before I decided to vacuum my apartment. I didn't feel tired. Bolstered by energy, I wiped down my bathroom, scrubbed the toilet and wiped down my kitchen, too. Oh, yes -- a load of laundry also made it to the washer and dryer! There was lunch, rest and some beading before I took a shower and got ready for my evening out with a crazy friend.

Hurricane Jill came bearing smiles, hugs and a gift I loved the moment I put them on. Feast your eyes on my new animal magnetism below. Isn't it a scream?




On the way to our Greek dinner, Jill shared some wisdom:

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Food and my dinner companion were stellar. We hung out for a little over two hours at the restaurant to enjoy the Greek music playing live in the background as well as the belly dancer that came. It made me envious. I still have a small wound on my belly and can't exercise that way.

We came back to my apartment for some giggles before she made her way back across town. How I've missed her humor and good nature! After she left, I still had some zippy energy so I ended up talking to Tawny briefly on IM to make plans for tomorrow. Kathy called me back to catch up and Angie called me on her way home in Los Angeles.

You don't know how being able to do all the activities today made me happier. It felt like progress. The specter of going through the same recovery period after five more chemo appointments doesn't scare me. At the very least, I know there is getting better each time. One day there will be a getting better for good.

Kisses,
Sarah
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Thursday, March 18, 2010

Beady Babe

Nightmare images accompanied my more restful sleep but they didn't terrify me. Not being in shoulder and neck pain when I woke up were my trade offs, too. A hearty bowl of cereal and a gigantic mug of coffee banished any remnants of the night...

The one annoying side effect of chemo is my itching hands. They look inflamed and irritated. Washing my hands at least a dozen times a day probably doesn't help. I am trying to apply food grade coconut oil on it after each washing to see if it will help. I will make a call to the doctor's office tomorrow to see if there is a specific cream to apply.

What was my fun-filled activity today? Beading bracelets. I made three complete bracelets and even sent one off to a part of the world this afternoon. I have six other bracelets "staged" just waiting for proper string and center bead thanks to my galpal Jill. In her effervescent way, she announced my bracelet offer to her office after reading my blog and I now have six to complete. She will receive her own tomorrow night when we have dinner. If you ever need loud support from a friend, Jill is your magic pill!

Pretty beads...



Not much today, my lovelies. Just itchy skin and pretty beads.
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